Big news. Samuel is going to come home in two or three weeks. They will be evaluating him in two weeks to see if he will be coming home with a G-Tube (a feeding line right to his stomach). This week they are trying something different. They are feeding him every 4 hours instead of 3 so that he is hungrier for the bottle. He was only taking 5-10ml because he wasn't hungry enough. Yesterday he took 40 from the bottle.
I have mixed feelings about Samuel coming home. I am going to be very happy that I will get to see my boy every day. However when he comes home it will essentially be a NICU at home with Leyla as the nurse. Samuel will be on oxygen until end of summer and most likely have a G-Tube. There will also be monitoring equipment. What this all means is that instead of going to the hospital; Leyla will be at the house caring for Samuel 24 hours a day, 7 days a week. Samuel will be in his room with all that equipment; oxygen tanks, monitors, and a feeding machine. Please pray for Leyla, she has been under a lot of stress with the mastitis, the crazy pumping schedule, traveling to the hospital. She is going to be teaching an online course (possibly two sections) starting in March.
I just don't even know what to think. It is different, longer term than I was expecting. No vacation to the beach this summer like I was hoping. No visiting relatives for birthday parties. However, I know God has a plan for all of this. It is only a season and it will pass.
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2 comments:
It sounds like you already know the answer to coping with all this - take it one day at a time. Each day has enough trouble of it's own - do not worry about tomorrow - right? (Only reason I know those verses is because of how much God has had to work on me in wanting to plan things and know what's going to happen...) Continuing to pray for God's grace and strength to help you take each moment as it comes! I'm so glad you will be able to be a family all together so soon!
It is a truth of human nature, that we value most the things for which we have sacrificed the most.
Your son, Samuel, is a very lucky boy.
Let us know how we can help.
-blindman
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