Yesterday Samuel remain basically unchanged with his oxygen between 33% and 36%. Leyla was able to see Samuel with his eyes open yesterday. His puffyness has really gone down. While Leyla was there, Samuel's blood gas went down slightly. The alarm went off and Samuel decided to breath some big breaths. This is good since we want him to eventually be off the support.
Today the oxygen is at 35%. The doctors decided to lower his Nitrous Oxide from 5 ppm to 2.5 ppm. The Nitrous Oxide is what helps with the pulmonary hypertension. The fentanyl which is the pain medication was lowered from two to one mcg/hr/kg.
Yesterday I made some long phone calls to apply for the patches of light program. Today I am planning to go to the Social Security Administration building to apply for Medicaid for Samuel. While the medicaid won't help now, it might help as a backup health insurance to pay for the second surgery in 6 to 12 months. I will be there several hours waiting. I hear the lines are long.
I am planning to see Samuel tonight after the SSA. I thank God for the time I can spend with Samuel. I thank God for the tremendous care that they are giving him at Nationwide Children's Hospital.
1 comment:
Nice Slippers!! :-)
So glad to hear he's doing well. I still remember when Karigan was becoming more aware in the hospital and I could finally look into her eyes. Happy/sad memories!
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